August 7
Ally has had a very busy week so far. Monday, she and I went to Camp Rainbow and the Cancer Center. Allyson wasn’t too sure about it all at first, but she had a great time! (It turned out to be the hottest day of the year so far, so all but one of the activities was inside.) When we first walked into the center, there were lots of people mulling about. She didn’t want to stay there, so we went out to the second floor lobby where they had a “circus” tent set up. She had a ball. (Be sure to check the pics and movies this Sunday.) Once she was used to everything, she was able to paint, glue, color…make a sailboat (her most prized possession right now)…make and “ocean” out of a water bottle…play in the water outside - she loved to squirt people, but she did NOT like to get squirted.
Tuesday - Thursday this week, Allyson went to school. Pre-school hasn’t start, so she just went to daycare. She was a little overwhelmed Tuesday…everyone was so glad to see her back. Yesterday was a much better day. I’m glad she was able to go this week and get used to going back. My school year starts on Monday, so she’ll be back to daycare full time. Her school starts a week later.
Oh! Friends of Kids with Cancer called and offered us tickets to the Wiggles Tuesday night. All four of us went. Brad and I were hoping Allyson would like it and wouldn’t be too overwhelmed by the noise. We thought she MAY like it because she knows the music. She was excited to go. The four of us made our way to our section, but Allyson would not even go into the arena. I took Benjamin to our seats and sat there for a bit. We were hoping Ally might decide to come in once the show started. - Benjamin loved it! He was smiling, clapping and looking all around and following what was happening on the stage. Ally and Brad did not come in. He couldn’t get her to even go in the doorway. We had to leave. - We tried, and I’m glad we did. You know…it is a sensory thing with her. There’s nothing we can really do to fix it. It is common for kids with Down syndrome to have this same issue. Dr. Rob suggested we get earphones to help block out some of the noise. It is worth a shot. - We’re not going to give up…someday she’ll figure it out.
Tonight starts our last backpack weekend. Tomorrow Ally gets her last bone marrow biopsy and spinal tap in this round of therapy. Keep your fingers crossed that both come back clean.