May 26
We have seen witnessed once again the cumulative effects of lots of chemo in a our little girl. The last week or so has been difficult. Can I just say THANK GOD we are finished with Dex, the lovely steroid that makes Allyson so moody! It will take a bit for it go work its way out of her system, and we cannot wait. She is very bloated and wants to eat constantly. - It is strange to not have to give her medication all the time right now. — The vincristin (however you spell it) has caused her legs to be weak again. It can also cause something called “drop foot”…Allyson’s little foot gives out every once in a while and she just drops to the floor. Poor kid… - We are just starting to see Ally get more energy back.
We have an easy week this week as far as treatment goes. The first two weeks of June are intense. We have to go in five days in a row the first week…off two days…back in the office for four straight days…each weeks starts with a visit to the hospital for lumbar punctures (spinal taps) and chemo in the spine. We’re not looking forward to these two weeks.
Benjamin is plugging right along. He’s saying more and more each day. We are working on his little temper tantrums. He throws a fit if he doesn’t get his way, a huge fit. We’re working on it…
Gramps is here from New Orleans. The kids are loving it! Both of them give big smiles when they see him first thing in the morning. Play, play, play!! It is so good to see Gramps get Allyson giggling like crazy! Benjamin LOVES his Gramps. Both of them followed him to the bathroom this evening. If they could have gotten the door open, they’d have been in there with him!
This is Allyson’s last week of school. Let’s hope she can make all three days this week to finish out the year.
May 28th, 2008 at 17:30
Hi Lisa, Brad, Ally and Benjamin: I wanted to come early in June to visit the kids, but I guess I will wait until Ally is finished with all her treatments, at least until the first few weeks of June are over. She will do just fine, Wish she just didn’t have to go through all of this. She is the sweetest and most kindest little girl ever. Lisa, call me when I can come and do a home visit with the kids, I need to see Benjamin too. Love to all, continue to keep your positive attitudes. Kathy Kroenung