Day 74, March 29
Benjamin woke up bright and early this morning (like before 6:30). He must have heard Nana and Gramps getting ready to leave…he was standing up in his bed crying. Brad went to get him, and Gramps was able to feed him one last time before going back to New Orleans. Allyson slept well -until about 8:30 when she was woken up by daddy.
It was a day in for the Verdigets family. We stayed home and played all day. Allyson played stickers first thing this morning. We played lots of games as well as the Wii. This evening we even got out the Playdough for a while.
The IV nurse came right before noon to take out the chemo bag and swap it for just a bag of fluid. Allyson is doing very well with the backpack. I think she’s a little more tired this time (with the backpack). It is a bigger dose of chemo, so maybe that has something to do with it. - She’s doing a really good job of remembering we have to come get the backpack and carry it around when she wants to walk. (Let me just say, it is very tricky to hold the backpack and keep her from tangling in all the tubing when she decides she wants to dance with Pablo.) - She’s been on the backpack now over 48 hours. Brad and I have to set the alarm and get up at 5:45 to begin a new pump that carries the chemo “antidote”. Hopefully, she’ll quickly clear the chemo out of her body like she did last time so we can de-access her tomorrow night. If not, she’ll have to continue with the backpack until Monday.