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It seems that we have not updated the blog or our website is some time. Well we finally had some time and uploaded new pictures, enjoy. Ally has had some ups and downs since January. Her liver counts have been all over the board. She had missed several doses of chemo but we are now getting half doses which is a good thing. Ally also had a reaction to one of her meds that she had been on for over two years. This resulted in her breaking out in a rash and becoming very itchy, as Ally would say it “I itchy”. She has had to go on steroids so she has been eating none stop. We just got to cut back her doses so we hope we will be almost done with them. Ben is growing like a weed. He really loves baseball and he can throw the ball pretty well, catching is a whole other story but we are working on it. On this Wednseday Ben has to have eye surgery. Both of his eyes cross so we needed to get that corrected. I am sure Wednesday will be a long day for Ben, Lisa and I. We will keep the blog updated on how he is doing.

Happy Birthday, Brendan!  Five years ago today we welcomed Brendan into this world. We got to send an hour and half with before he passed away…..Today Lisa and I took the day off to remember him. We took the kids to school today and then headed to breakfast (we do this every year).  After breakfast we went to the flower shop and got a bunch of tulips, some pink roses and 3 blue and 2 white balloons.  We went to Brendan’s grave site and spend some time with him and placed the tulips next to his marker. It is our tradition to release balloons on his birthday. This year as in years past when the let the balloons go they all start off in a bunch and then one of the white balloons always parts from the group. Lisa and I are always amazed that this happens. It was very nice to just stand there and watch them go. After that we went to put the roses on Lisa’s mothers grave.. We spent so time with Shirley and then we headed out.It was a nice day for Lisa and I to reflect and remember what was, what could have been and what is……..

We were at Saint John’s to have a bone marrow biopsy to rule out Leukemia. Little did me know how much our lives would change. Lisa and I can remember waiting for Dr. Rob to come over and give us the news. It was taking awhile and when we saw both Dr. Rob and Dr. Jan walking down the hall we knew the news was not going to good.It has been a roller coaster and we still have 8 more months to go. Ally has been amazing through the whole process.  We are looking forward to some good news in August.

Benjamin turns 3 today! We are looking forward to his party this weekend.

Each night, I asked Ally what her favorite part of the day was.  Last night, she told Brad, “Being a princess!”  She had been to the Bippity Boppity Boutique that day (more on that in a minute) and her “fairy godmother” made her a princess!  Let me just say, she has been a princess all week – in a good way.  They call this place Give Kids the World, and they do that and more.  From the moment the wish begins, everything is about the wish child.  Everything was booked in Allyson’s name, and we were her guests.  We called our villa her house all week, and she LOVED that!  Each night when we’d return and go through the guard at the front of the property, the volunteer would always say, “Welcome home!”

That is exactly how you feel when you are here…home away from home. The staff here at GKTW bends over backwards to make sure you have everything you could want.  Once inside the parks, Ally was treated like royalty, especially at Disney World.  If you ever doubt the kindness of humans, spend the day with a wish child.  If you ever need to witness the strength of the human spirit, come spend the day walking around the village at Give Kids the World.

Tomorrow we return home.  I am sad Ally’s wish has come to an end.  Since her diagnosis, we have been looking forward to this week for almost two years.  While this is the end of her magical wish week, we look to the future when we hear the words, “Ally is cured!”